Tag Archives: Journey

Brooks Journey… Diagnosed with Tay-Sachs Disease July 23rd, 2012

Please donate at: www.indiegogo.com Brook has been diagnosed with a rare, autosomal recessive metabolic disorder. Hello…. my name is Kate and I’m the mother of Jake, 8 years old and Brook, 19 months. Brook has been diagnosed with a rare, … Continue reading

Share
Posted in Tay-Sachs Disease | Tagged , , , , , , , | 2 Comments

jeremy’s journey with legg-calve-perthes disease

perthes disease Video Rating: 5 / 5

Share
Posted in Osteonecrosis | Tagged , , , | 3 Comments

My Battle with Graves Disease and Journey to Wellness

I discuss my battle with Graves Disease and how I changed my life to be happy and healthy. Tim from www.liveliketim.com interviews me as we emphasize the importance of financial priorities in life. Video Rating: 5 / 5

Share
Posted in Thyroid Diseases | Tagged , , , , | 4 Comments

Our Journey with Hydrocephalus

Robert was diagnosed with hydrocephalus at 19 weeks gestation. We were told he would have no quality of life if he even survived. We were told repeatedly to terminate the pregnancy. I prayed to God to take it in his … Continue reading

Share
Posted in Hydrocephalus | Tagged , | 12 Comments

Brooke’s Journey with Neuroblastoma

Video Rating: 5 / 5

Share
Posted in Neuroblastoma | Tagged , , | 2 Comments

Weight loss surgery isn’t just an operation it’s a journey

(Sonoran Living Sponsor) Dr. Terry Simpson helps you make your weight loss journey a reality Video Rating: 0 / 5

Share
Posted in Weight Loss Surgery | Tagged , , , , , , , | Leave a comment

Childhood Cancer our journey! Ewing’s Sarcoma

February 1st 2007 our lives were changed forever. Our 15 year old daughter Nicolette (Nikki) was diagnosed with ewings sarcoma. For about 6 months Nikki was complaining of lower back pain off and on. The pain would go away with … Continue reading

Share
Posted in Bone Cancer | Tagged , , , , | 13 Comments

Gloriika hemangioma journey (propranolol)

When Gloriika was 16 days old a little red mark appeared on her right cheek. I knew that it was not just a regular rash . When she was about 5 weeks old it started to grow.It was diagnosed as … Continue reading

Share
Posted in Vascular Diseases | Tagged , , , | 25 Comments

A Craniosynostosis Journey

My little girl’s journey through craniosynostosis. This video is to help spread awareness and support for any parents, grandparents, friends, or family that find themselves sharing in this very emotional journey. Video Rating: 5 / 5

Share
Posted in Head and Brain Malformations | Tagged , | 10 Comments

Tay-Sachs Disease Ethan’s Journey…

Short video about our son who has recently been diagnosed with Infantile Tay-Sachs disease which is fatal in children. There is currently no cure.. Video Rating: 5 / 5

Share
Posted in Tay-Sachs Disease | Tagged , , , | 7 Comments