Childhood Cancer our journey! Ewing’s Sarcoma


February 1st 2007 our lives were changed forever. Our 15 year old daughter Nicolette (Nikki) was diagnosed with ewings sarcoma. For about 6 months Nikki was complaining of lower back pain off and on. The pain would go away with Motrin and sometimes be gone for a few weeks at a time so the doctor said to stop doing sit ups (she did 100 a day) and not to run on the treadmill and see what happens. Then on Feb.1st she said the pain was so bad she can’t sit in the chairs at school. That morning I took her back to the doctor and she sent us for a MRI that day. A few hours later the phone rang with the doctor telling us to pack a bag and get to Children’s Memorial Hospital that something was seen on the MRI. Since that day she has had several procedures, scans, MRI, and biopsy. Due to the location in her spine it is inoperable. She has completed 9 rounds of chemotherapy out of 14 all inpatient and she has just finished 31 radiation treatments. She loves shopping, listen to Bob Dylan, and horseback riding. Her older sister is her best friend and as she says her 2 younger sisters are annoying. Nikki is an inspiration to all of us with her strength and her constant negotiations with the doctor to move chemo for a week or two due to what she calls more important things. They gave in this time so she could start her Junior year but it’s going to be the last time. As with all these amazing kids life has been a roller coaster this past year in and out of the hospital, low counts
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13 Responses to Childhood Cancer our journey! Ewing’s Sarcoma

  1. libertydogfight says:

    The US Military Developed Cancer-is why 8 million people die of cancer each year-electrically enhanced Cancer cell were grown in the 1960′s and put into Polio and later MMR shots for children before we could enter public school-Why COVERT POPULATION CONTROL-cause the Govern is just that EVIL. For Evidence-See Ed Hasland’s Book”DR Mary’s Monkies.” MRI’s and Radiation and Chemo will only give you more cancer.To reduce # of kids Women were main targets.

  2. lebanator1 says:

    i lost my 20yr lil brother from ewings sarcoma :( i just found this page on 1 of his favourites on his youtube acount

  3. RachelTaylor63 says:

    My daughter, Brandy Lynette Reid, died with Ewing Sarcoma Cancer at the age of 19 after stuggling with it for 18 months. She had 6 tumors when diagnosed. After treatments they were all gone except a portion of the mass in her pelvis. Within 2 months it all returned. The one on the brain controlled her emotions. Thru it all I that unconditional love is the greatess love of all!!! I pray that there will be more studies done!! 9/22/89-2/7/2009 R.I.P. Brandy Mom loves you!! It’s still hard.

  4. chandler907 says:

    Did she beat her cancer?

  5. arcadio209 says:

    very hard ting to go thru. many people dont kno the struggles cancer patients gotta go thru. i sincerely hope all goes well for her and all ur fam. i kno how hard it is on evrybody, ewings sarcoma has affected my life since i was 12. im now 16 and it seems im losing tha battle. bt u guys keep fighting and find suport. physical and emotional health is important.

  6. loljkomg2177 says:

    i am a ewings sarcoma survivor and i wish you all the best!

  7. RainCrow61 says:

    Look, you can cure cancer I’ve seen people do it. You can hear them as guests on the Cancer CureShow. But will you? I’ve also seen people fail. I will make a movie with you over Skype where I will give you the tools, or a few of them to get started with. So how about it?
    Bayard Barnes Cell 813-786-0136.
    This note was passed to you by Meredith, Bayard’s assistant

  8. gonikki501 says:

    carepages website

    nikkiweinberg is the page name no space

  9. gonikki501 says:

    Follow Nikki’s 3+ year journey with Ewing’s Sarcoma at

  10. gonikki501 says:

    @gonikki501

  11. gonikki501 says:

    @ghostrid3

  12. ghostrid3 says:

    status update?

  13. Havremark says:

    hej Nikki. min søn har lige konstateret ewings sarkom og har lige været igemmen sin første kemotherapi.han er 15 år. håber du har det godt. vær stærk.

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